CHPA-China
CHPA机构简介
皮质醇增多症联盟（China Hypercortisolism Patient Alliance，CHPA）是皮质醇增多症（又称库欣综合征）患者及其家属于2018年自发成立的民间公益组织，旨在普及皮质醇增多症国际国内前沿的诊疗知识进展，帮助组织患者配合实施临床研究，推动疾病诊疗水平提高，致力于提供互助互动的患者真实经验交流平台并收集汇总病家和医者双方经验从而推动该疾病的医患双方进步。
2019年1月份CHPA成为世界脑垂体组织联盟（WAPO）的正式会员，2019年6月成为中国罕见病组织网络的正式会员。
微信公众号：CHPA131499（皮质醇增多症联盟）
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China Hypercortisolism Patient Alliance（CHPA）was founded in 2018 by a group of patients with Cushing’s Disease and their families. It is a non-profit organization that aims to provide information and support for optimal treatment and care for all patients with hypercortisolism and related issues. CHPA also provides access to information on public education, clinical trials and effective treatments on pituitary-dependent disorders nationwide. It is guided by a Medical Advisory Board consisting of much experienced neurosurgeons and endocrinologists and it maintains a database of experiences from both doctors and Chusing’s patients who are willing to make changes by sharing their own expertise.
In January 2019, CHPA became a full member of the World Pituitary Organization Alliance (WAPO). Later in June 2019, it became a full member of China’s Rare Disease Organizations Network.
